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How can poetry help raise awareness of Parkinson’s disease? We look back at five interviews.
Stella Pierides captures the “essence” of Parkinson’s disease
British author Stella Pierides says she feels like she’s been writing her whole life. The poetic form of her haiku especially caught her interest, and since she was diagnosed with Parkinson’s disease in 2017, she has supported her personal health.
“The purpose of a haiku poet is to capture the essence of a moment or experience and share it with others,” explains Stella, recommending reading and writing to others as a way to exercise their minds. “We argue that it may serve as a creative tool to support psychological health and improve the quality of life of people with Parkinson’s disease.”
Stella says that writing haiku has allowed her to express her experiences with Parkinson’s disease by putting into words the “fear and pain of Parkinson’s disease.”
Learn about Stella Pierides and her experiences with haiku.
Dean Cook uses limericks to stimulate the mind
After being diagnosed with Parkinson’s disease around 2008, Dean Cook addressed his feelings about Parkinson’s disease by writing poetry, especially his love of limericks. “We people with Parkinson’s [can] I can’t sleep, so sometimes I wake up in the middle of the night, but I put together some rhymes and limericks to keep my mind active,” he says.
He says of one of his Tongue in the Cheeks piece, Parkinson’s Blues: [often] Not seeing anything actually done – that’s what inspired me to write poetry. “
Dean encourages others in the state to pick up the art form.
Learn more about Dean Cook and his limericks.
Meet Katherine Stryczyk, Parkinson’s Lifetime Poetry Competition Winner
US-based writer and editor Katherine Stryczyk wins 1st place in the 2019 Poetry Competition for her inspiring work, “Circular Green Metal Hairbrush with No Bristles and Worn Rubber Handle” Did.
An emotional portrayal of Parkinson’s disease, marriage and grief, this poem was written two months after the death of Katherine’s husband, Larry. “This poem came to mind,” she recalls. “I was cleaning when I found his hairbrush in my drawer. It puts my sadness in writing.”
Reflecting on her victory, she added: This poem is more meaningful to me now that I’ve taken some distance from the situation. “
Learn more about the stories behind Katherine’s award-winning poems.
On Mark Woodward’s poem “San Francisco”
In 2019, Mark Woodward stood out as the runner-up in the Parkinson’s Poetry Contest. In his poem San Francisco, the city of the United States serves as the backdrop for the writer’s nostalgia and subtle reflections on the situation.
According to Mark, the poem shouldn’t even be about Parkinson’s disease. “We were going to talk about San Francisco, but Parkinson’s crept in!” he explains. “I try to avoid writing too much about Parkinson’s because I don’t want it to define me…I just want to be myself.”
Learn more about the inspiration behind Mark’s poem “San Francisco”.
Mike Bell’s Inspirational Poetry About Caregivers
After being diagnosed with Parkinson’s disease in 2015, designer-turned-poet Mike Bell set out to write poetry every day for a year. This commitment, which he says he hopes will help him maintain his mental skills, continues to this day.
For World Parkinson’s Day 2016, we asked Mike to write a poem specifically for the often overlooked caregivers of people with Parkinson’s disease. Close to Parkinson’s: It Hurts aims to raise awareness of the work caregivers do to help their loved ones maintain quality of life.
Read the inspiring poems of Mike Bell.
For more information on how to live with Parkinson’s, visit the Parkinson’s Europe website.
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“The goal of a haiku poet is to capture the essence of the moment.”
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